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Help us advocate for the rights of patients with chronic and life-threatening illnesses. Work with us at community, state and federal levels in support of reforms and legislation aimed at advancing patient access to and affordability of healthcare.
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Issues & Actions
“Cures will become the norm” over the next decade – due to life sciences innovation
A new report by MassBio, which represents more than 1,200 life sciences companies and organizations, analyzes the next decade of innovation, access, value and reimbursements within health care.
PSSNY PBM Support Letter from Patient Advocate Groups
The legal requirement that the welfare of patients is the primary duty and obligation of anyPBM aligns their responsibilities with those of every other state regulated entity inhealthcare. This alignment is good news for patients as is legal standing if a PBM...
Patients Rising NOW opposes HR 3708
Patients Rising NOW has joined a coalition of patients, doctors, policy experts, and providers in opposing HR 3708.
Safe Step Act would protect patients from fail first insurance abuses
Insurance companies would no longer be allowed to unilaterally force patients to fail first on cheaper & less effective treatments under the Safe Step Act.
Get Involved – Become An Advocate
There are many ways you can get involved with Patient Rising Now. Please take a moment to let us know how you can help us advocate for patients' access to care.
Patients oppose Trump plan to end medical exemption from deportation
More than 100 patient organizations are speaking out and expressing concern with the Trump administration’s plan to end a medical deferred action program, which allows immigrants to delay deportation proceedings on medical grounds. “This change essentially terminates...
Study: Patient out-of-pocket costs up 4x in 12 years
If you’re feeling the pinch of skyrocketing out-of-pocket health care costs, you aren’t alone. Across the country, millions of patients with “good” health insurance are being hit with higher out-of-pocket costs every time they go to access their health care. By one...
Share your story
Help us get your voice heard. Your personal story is a powerful call to action.
What to share
Tell us whether your insurance company is not responding to your needs, the health care maze is bringing you down, or share your success in solving a patient problem.
Why Stories Matter
We use patient stories to bring attention to patient access issues at the federal level and in state houses around the country. We’ll let policy makers and elected officials know patients are rising now.
Be specific the most powerful stories include real-world examples.
Be concise try to communicate your story clearly so everyone can understand.
On Social Media
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Carlos Ortiz, a gardener in Northern VA, received $15k hospital bill to treat his dizziness.
The solution: Health Care Transparency
A new @HHSGov rule requires hospitals to post clear prices BEFORE treatments.
@patientsrising @terrilox
https://t.co/uFxGMSAiGr
Advocacy News
“Cures will become the norm” over the next decade – due to life sciences innovation
A new report by MassBio, which represents more than 1,200 life sciences companies and organizations, analyzes the next decade of innovation, access, value and reimbursements within health care.
Safe Step Act would protect patients from fail first insurance abuses
Insurance companies would no longer be allowed to unilaterally force patients to fail first on cheaper & less effective treatments under the Safe Step Act.
These doctors cut out insurance companies to treat patients directly. Now, Congress wants to stop them.
The powerful insurance industry is lobbying Congress to pass HR 3708 to punish patients and doctors that escape the grasp of expensive health insurance.
From Our Patient Advocates
“Medicare refuses to cover my tube feeds. Since my doctor is unable to show proof that I will need my feeding tube forever, they don’t deem it as necessary. Reality is, without my feeding tube I wouldn’t be here today. I need it to survive. The rules and regulations are a one-size-fits-all model for humans who are complex and unique.”
“It is essential to find a doctor or team who not only listens to and believes you but also respects you, it’s all too easy to get overlooked, ending up with your insurance company dictating your care. I owe my parents everything for taking me to a psychiatrist when I was six or seven and unable to function due to my intrusive thoughts and obsessive tendencies. I can’t imagine how much more painful my childhood might have been otherwise. Access to the right kind of medical care can be not only the difference between life and death, it can also be the difference between misery and a life worth living.”
“Insurance should protect me from catastrophic costs as that’s the purpose of insurance. My costs should be a reflection of my care, not the cost of a company doing business. I will not be charged unreasonable or unexpected out-of-pocket costs for services after I have paid my premiums. Why should patients like me pay coinsurance based off the list price and not the negotiated rebate price? My insurance company should work to minimize my out of pocket costs and concentrate on providing care to me and my family.”