Patients with compromised immune systems are most at risk for coronavirus. Medicare blocks them from accessing in-home care.

Medicare rules block patients with underlying health conditions, including cancer and asthma, from accessing in-home care during coronavirus epidemic.

72 lawmakers back patients in fight over NBPP co-pay rules

Patients are getting some big-name support on Capitol Hill in the fight to block health care regulations that would increase patient out-of-pocket insurance costs in 2021. Seventy-two members of the House of Representatives are calling on U.S. Department of Health and...

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How Do PBM Business Policies Affect Patients?

How Do PBM Business Policies Affect Patients?

The past few years have seen some progress in efforts to rein in how pharmacy benefit managers (PBMs) operate. However, a lot remains to be done, especially with respect to state and federal laws that can mandate procedural changes. PBMs are the third-party...

More Issues & Actions

Keep the 2020 NBPP Co-pay Accumulator Rule in Place

Tweet Your Legislator - Ask them to Keep NBPP Copay Accumulator Rule In Place Please use the form below to tweet your legislator to ask them to support patients by asking @CMSGov to keep the 2020 NBPP #copayaccumulator rule in place. Patients need this assistance to...

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Tell us whether your insurance company is not responding to your needs, the health care maze is bringing you down, or share your success in solving a patient problem.

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We use patient stories to bring attention to patient access issues at the federal level and in state houses around the country. We’ll let policy makers and elected officials know patients are rising now.

Be personal this is your story, focus on your experience, what has impacted you.
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Patients with compromised immune systems are most at risk for coronavirus complications. Medicare blocks them from accessing in-home care.
https://t.co/8UJMlrpGQz #medicare #COVID19

Why are we seeing medical equipment shortages and exorbitantly high drug prices during the coronavirus outbreak?

One reason: Pharmacy benefit managers and group purchasing organizations locking hospitals into exclusive contracts that stifle...
#PBM #COVID
https://t.co/NgxeJIUZzy

Advocacy News

72 lawmakers back patients in fight over NBPP co-pay rules

72 lawmakers back patients in fight over NBPP co-pay rules

Patients are getting some big-name support on Capitol Hill in the fight to block health care regulations that would increase patient out-of-pocket insurance costs in 2021. Seventy-two members of the House of Representatives are calling on U.S. Department of Health and...

How Do PBM Business Policies Affect Patients?

How Do PBM Business Policies Affect Patients?

The past few years have seen some progress in efforts to rein in how pharmacy benefit managers (PBMs) operate. However, a lot remains to be done, especially with respect to state and federal laws that can mandate procedural changes. PBMs are the third-party...

From Our Patient Advocates

As a patient, I expect to be able to access the health care services I need.

“Medicare refuses to cover my tube feeds. Since my doctor is unable to show proof that I will need my feeding tube forever, they don’t deem it as necessary. Reality is, without my feeding tube I wouldn’t be here today. I need it to survive. The rules and regulations are a one-size-fits-all model for humans who are complex and unique.”

Carolanne Monteleone

Gastroparesis Patient, Pennsylvania

As a patient, health care decisions will remain between me and my doctor.

“It is essential to find a doctor or team who not only listens to and believes you but also respects you, it’s all too easy to get overlooked, ending up with your insurance company dictating your care. I owe my parents everything for taking me to a psychiatrist when I was six or seven and unable to function due to my intrusive thoughts and obsessive tendencies. I can’t imagine how much more painful my childhood might have been otherwise. Access to the right kind of medical care can be not only the difference between life and death, it can also be the difference between misery and a life worth living.”

Hannah Page

Borderline Personality Disorder, New York, NY

As a patient, additional health care costs will be limited by my health insurance company.

“Insurance should protect me from catastrophic costs as that’s the purpose of insurance. My costs should be a reflection of my care, not the cost of a company doing business. I will not be charged unreasonable or unexpected out-of-pocket costs for services after I have paid my premiums. Why should patients like me pay coinsurance based off the list price and not the negotiated rebate price? My insurance company should work to minimize my out of pocket costs and concentrate on providing care to me and my family.”

Bob Tufts

Multiple Myeloma, New York, NY