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for yourself – for others
Help us advocate for the rights of patients with chronic and life-threatening illnesses. Work with us at community, state and federal levels in support of reforms and legislation aimed at advancing patient access to and affordability of healthcare.
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Issues & Actions
Open Enrollment: Beware These Insurance Barriers & PBM Schemes
Here’s what every patient should look for during open enrollment to protect themselves from insurance companies and pharmacy benefit managers.
Mass. lawmakers consider tighter rules on abusive step therapy insurance practice
Massachusetts lawmakers are considering reforms to step therapy, an insurance practice that forces patients to fail first to boost insurance profits.
Bipartisan bill to eliminate co-pays, expand patient access to biosimilars
HR 4597, Acting to Cancel Copays and Ensure Substantial Savings for Biosimilars ACCESS Act, would eliminate patient copays and expand access to biosimilars.
Increase Access to Biosimilar Drugs
Patients need access to affordable and innovative treatments. That includes biosimilars, which are almost exact copies of biologic drugs. Like biologics, biosimilars can be used to treat many diseases such as cancers, colitis and a variety of autoimmune disorders,...
Get Involved – Become An Advocate
There are many ways you can get involved with Patient Rising Now. Please take a moment to let us know how you can help us advocate for patients' access to care.
Patients oppose Trump plan to end medical exemption from deportation
More than 100 patient organizations are speaking out and expressing concern with the Trump administration’s plan to end a medical deferred action program, which allows immigrants to delay deportation proceedings on medical grounds. “This change essentially terminates...
Study: Patient out-of-pocket costs up 4x in 12 years
If you’re feeling the pinch of skyrocketing out-of-pocket health care costs, you aren’t alone. Across the country, millions of patients with “good” health insurance are being hit with higher out-of-pocket costs every time they go to access their health care. By one...
Share your story
Help us get your voice heard. Your personal story is a powerful call to action.
What to share
Tell us whether your insurance company is not responding to your needs, the health care maze is bringing you down, or share your success in solving a patient problem.
Why Stories Matter
We use patient stories to bring attention to patient access issues at the federal level and in state houses around the country. We’ll let policy makers and elected officials know patients are rising now.
Be specific the most powerful stories include real-world examples.
Be concise try to communicate your story clearly so everyone can understand.
On Social Media
Twitter Feed
Patients Rising Now, a national non-profit organization fighting for patient access and affordability to health care, strongly opposes H.R. 3708, which would place unnecessary burdens on the practice of direct primary care. https://t.co/j7wPbFw8PL
"ICER poses a threat to patient access to new therapies. Its cost-effectiveness determinations have been so reliably friendly to insurers..."
#ICERWatch https://t.co/kGyDK6p1Bh
Advocacy News
America’s Biggest Charitable Giving: $5.7 Billion in Patient Assistance Programs
Patient assistance programs give away more money than the Bill & Melinda Gates Foundation – more than $5.7 billion to help patients access life-saving care.
Warning: Avoid Copay Accumulator in Open Enrollment
Here’s the first thing every patient should check before picking a health insurance plan during open enrollment: Does the plan have a copay accumulator?
Open Enrollment: Beware These Insurance Barriers & PBM Schemes
Here’s what every patient should look for during open enrollment to protect themselves from insurance companies and pharmacy benefit managers.
From Our Patient Advocates
“Medicare refuses to cover my tube feeds. Since my doctor is unable to show proof that I will need my feeding tube forever, they don’t deem it as necessary. Reality is, without my feeding tube I wouldn’t be here today. I need it to survive. The rules and regulations are a one-size-fits-all model for humans who are complex and unique.”
“It is essential to find a doctor or team who not only listens to and believes you but also respects you, it’s all too easy to get overlooked, ending up with your insurance company dictating your care. I owe my parents everything for taking me to a psychiatrist when I was six or seven and unable to function due to my intrusive thoughts and obsessive tendencies. I can’t imagine how much more painful my childhood might have been otherwise. Access to the right kind of medical care can be not only the difference between life and death, it can also be the difference between misery and a life worth living.”
“Insurance should protect me from catastrophic costs as that’s the purpose of insurance. My costs should be a reflection of my care, not the cost of a company doing business. I will not be charged unreasonable or unexpected out-of-pocket costs for services after I have paid my premiums. Why should patients like me pay coinsurance based off the list price and not the negotiated rebate price? My insurance company should work to minimize my out of pocket costs and concentrate on providing care to me and my family.”