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for yourself – for others
Help us advocate for the rights of patients with chronic and life-threatening illnesses. Work with us at community, state and federal levels in support of reforms and legislation aimed at advancing patient access to and affordability of healthcare.
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Issues & Actions
Trump administration proposes insurance loophole to hike patient out-of-pocket costs in 2021
New regulations proposed by the Centers for Medicare Medicaid Services contain an insurance loophole that will increase patients’ out-of-pocket costs in 2021.
What You Need to Know About the Opioid Workforce Act: HR 3414
What You Need to Know About the Opioid Workforce Act (H.R. 3414/S. 2892) A bipartisan bill was introduced in the US Congress in 2019 to help fund additional residency positions in hospitals and health systems in an effort to help stem the opioid crisis that the...
Fact Check: Yes, patients in America are going to jail for unpaid medical bills.
Last fall, the independent non-profit news outlet ProPublica published an explosive investigation by Lizzie Presser, which uncovered how patients in Kansas were being sent to jail for unpaid medical bills.
CMS: Don’t Let Insurance Take My Copay Assistance!
The Centers for Medicare Medicaid Services has proposed new health insurance regulations that will allow insurance companies to pocket our copay assistance and not count it towards our annual deductibles.
Support the Personalized Care Act of 2020
Americans are Speaking Up and Want Greater Access to Care through Affordability, Transparency, and Choice. Please write to your representatives and president to ask for their support of HR 5596 which strengthens and expands access to Health Savings Accounts, which are...
Dr. Kimberly Corba: Congress sits on reform to expand HSAs to all patients
President Trump is moving at breakneck speed to deliver real relief to patients struggling with outrageous medical bills. Over the past three years, the Trump administration has proposed a long list of historic healthcare initiatives that directly challenge the...
Hospitals suing to stop honest health care pricing
An effort by the Trump administration to help patients battling sky-high surprise medical bills is earning high praise from patients, consumer advocates and even former health care advisers to President Obama. Under a Department of Health and Human Services rule...
Share your story
Help us get your voice heard. Your personal story is a powerful call to action.
What to share
Tell us whether your insurance company is not responding to your needs, the health care maze is bringing you down, or share your success in solving a patient problem.
Why Stories Matter
We use patient stories to bring attention to patient access issues at the federal level and in state houses around the country. We’ll let policy makers and elected officials know patients are rising now.
Be personal this is your story, focus on your experience, what has impacted you.
Be specific the most powerful stories include real-world examples.
Be concise try to communicate your story clearly so everyone can understand.
On Social Media
Twitter Feed
A report by the Institute for Clinical and Economic Review could affect patients' ability to access to three new acute migraine treatment innovations. #migraine https://t.co/DnJgKR2MeW #ICERWatch
We support copay assistance programs, which reduce patients’ out-of-pocket health care costs.
If you agree, we need your help! https://t.co/F1fzyuh4ei
Advocacy News
Trump administration proposes insurance loophole to hike patient out-of-pocket costs in 2021
New regulations proposed by the Centers for Medicare Medicaid Services contain an insurance loophole that will increase patients’ out-of-pocket costs in 2021.
What You Need to Know About the Opioid Workforce Act: HR 3414
What You Need to Know About the Opioid Workforce Act (H.R. 3414/S. 2892) A bipartisan bill was introduced in the US Congress in 2019 to help fund additional residency positions in hospitals and health systems in an effort to help stem the opioid crisis that the...
Fact Check: Yes, patients in America are going to jail for unpaid medical bills.
Last fall, the independent non-profit news outlet ProPublica published an explosive investigation by Lizzie Presser, which uncovered how patients in Kansas were being sent to jail for unpaid medical bills.
From Our Patient Advocates
“Medicare refuses to cover my tube feeds. Since my doctor is unable to show proof that I will need my feeding tube forever, they don’t deem it as necessary. Reality is, without my feeding tube I wouldn’t be here today. I need it to survive. The rules and regulations are a one-size-fits-all model for humans who are complex and unique.”
“It is essential to find a doctor or team who not only listens to and believes you but also respects you, it’s all too easy to get overlooked, ending up with your insurance company dictating your care. I owe my parents everything for taking me to a psychiatrist when I was six or seven and unable to function due to my intrusive thoughts and obsessive tendencies. I can’t imagine how much more painful my childhood might have been otherwise. Access to the right kind of medical care can be not only the difference between life and death, it can also be the difference between misery and a life worth living.”
“Insurance should protect me from catastrophic costs as that’s the purpose of insurance. My costs should be a reflection of my care, not the cost of a company doing business. I will not be charged unreasonable or unexpected out-of-pocket costs for services after I have paid my premiums. Why should patients like me pay coinsurance based off the list price and not the negotiated rebate price? My insurance company should work to minimize my out of pocket costs and concentrate on providing care to me and my family.”