We the patients Fly-inSecond Annual
June 12 and 13, 2023
Visit our Advocacy Action Center to review opportunities to make a difference.
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Coalition Updates & Actions
We partner with many patient advocacy coalitions and lead some ourselves.
Learn about actions you can take right now in our coalition hub.
State-by-State Actions & Resources
Learn about specific actions you can take to impact policy decisions and find critical advocacy resources.
We want to hear what you’ve experienced as a patient. Take a few moments to share your experience and motivations to advocate for patients.
When our elected officials hear from patients, they listen and take action.
Advocacy Masterclass 2023 Applications are Open
The Advocacy Masterclass, part of our Patient Learning Center, is designed to train patients, caregivers, and citizens in the art of healthcare advocacy.
New Court Ruling May Restore Cost-sharing Barriers to Disease Prevention
By Surabhi Dangi-Garimella, Ph.D. In 2010, the Affordable Care Act (ACA) required a majority of private health plans to cover preventive healthcare services without any out-of-pocket costs to enrollees: meaning no co-pay or deductible. However, a new ruling by a Texas...
Patients Rising Now Sends Letter of Support on PBM Bill
Patients Rising Now sent a letter of support for Representatives Buddy Carter's (R-GA-01) and Lisa Blunt Rochester's (D-DE-AL) legislation: The Protecting Patients Against PBM Abuses Act. The problem is PBMs is so widespread that it is not only confined to patients...
Patients Rising Now Signs onto Medigap Access Legislation
Patients Rising Now joined several other organizations in sending a letter to the Texas House of Representatives in support of a bill that would increase patient access to supplemental Medicare plans referred to as Medigap plans. In the current system, patients who...
From Our Patient Advocates
As a patient, I expect to be able to access the health care services I need.
“Medicare refuses to cover my tube feeds. Since my doctor is unable to show proof that I will need my feeding tube forever, they don’t deem it as necessary. Reality is, without my feeding tube I wouldn’t be here today. I need it to survive. The rules and regulations are a one-size-fits-all model for humans who are complex and unique.”
As a patient, health care decisions will remain between me and my doctor.
“It is essential to find a doctor or team who not only listens to and believes you but also respects you, it’s all too easy to get overlooked, ending up with your insurance company dictating your care. I owe my parents everything for taking me to a psychiatrist when I was six or seven and unable to function due to my intrusive thoughts and obsessive tendencies. I can’t imagine how much more painful my childhood might have been otherwise. Access to the right kind of medical care can be not only the difference between life and death, it can also be the difference between misery and a life worth living.”
As a patient, additional health care costs will be limited by my health insurance company.
“Insurance should protect me from catastrophic costs as that’s the purpose of insurance. My costs should be a reflection of my care, not the cost of a company doing business. I will not be charged unreasonable or unexpected out-of-pocket costs for services after I have paid my premiums. Why should patients like me pay coinsurance based off the list price and not the negotiated rebate price? My insurance company should work to minimize my out of pocket costs and concentrate on providing care to me and my family.”