Be an advocate
for yourself – for others
Help us advocate for the rights of patients with chronic and life-threatening illnesses. Work with us at community, state and federal levels in support of reforms and legislation aimed at advancing patient access to and affordability of healthcare.
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News & Updates:
Issues & Insights
Statement by Patients Rising NOW on CMS Decision to Increase Out-of-Pocket Costs for Patients
Sadly and surprisingly, the Center for Medicare and Medicaid Services has sided with he bottom line of insurance companies and delivered devastating financial harm to patients — at a time when many simply cannot afford it.
Get Involved – Become An Advocate
There are many ways you can get involved with Patient Rising Now. Please take a moment to let us know how you can help us advocate for patients' access to care.
Insurance prior authorization takes doctors away from patients during COVID-19 pandemic
Doctors working long hours are discovering an increased demand on their time from a familiar foe: insurance prior authorization requirements.
Louisiana took emergency steps to help patients. Now, the insurance industry is suing to stop it.
Louisiana has taken decisive action to help patients through the public health crisis.
Now, the Louisiana Association of Health Plans plans to file a lawsuit to overturn emergency rules designed to help patients during the COVID-19 crisis.
COVID-19: Patient assistance programs expand access, offer free medication
During the COVID-19 pandemic, patient assistance programs are providing free medications, expanding patient support services and increasing access.
3 ways every state can help patients during coronavirus epidemic
During the coronavirus epidemic, states have emergency authority to waive regulations, cut red tape and expedite patient care with a federal 1135 Waiver.
Share your story
Help us get your voice heard. Your personal story is a powerful call to action.
What to share
Tell us whether your insurance company is not responding to your needs, the health care maze is bringing you down, or share your success in solving a patient problem.
Why Stories Matter
We use patient stories to bring attention to patient access issues at the federal level and in state houses around the country. We’ll let policy makers and elected officials know patients are rising now.
Be personal this is your story, focus on your experience, what has impacted you.
Be specific the most powerful stories include real-world examples.
Be concise try to communicate your story clearly so everyone can understand.
On Social Media
Twitter Feed
NEW SURVEY: Majority of Americans Don't Know Healthcare Rationing Takes Place in Their Own Backyard https://t.co/nwGQQdcqpX
The 2021 Notice of Benefit and Payment Parameters limits patients’ access to medications, putting their health at risk and potentially increasing costs to the health system. https://t.co/CDD5zVrUvv
From Our Patient Advocates
“Medicare refuses to cover my tube feeds. Since my doctor is unable to show proof that I will need my feeding tube forever, they don’t deem it as necessary. Reality is, without my feeding tube I wouldn’t be here today. I need it to survive. The rules and regulations are a one-size-fits-all model for humans who are complex and unique.”
“It is essential to find a doctor or team who not only listens to and believes you but also respects you, it’s all too easy to get overlooked, ending up with your insurance company dictating your care. I owe my parents everything for taking me to a psychiatrist when I was six or seven and unable to function due to my intrusive thoughts and obsessive tendencies. I can’t imagine how much more painful my childhood might have been otherwise. Access to the right kind of medical care can be not only the difference between life and death, it can also be the difference between misery and a life worth living.”
“Insurance should protect me from catastrophic costs as that’s the purpose of insurance. My costs should be a reflection of my care, not the cost of a company doing business. I will not be charged unreasonable or unexpected out-of-pocket costs for services after I have paid my premiums. Why should patients like me pay coinsurance based off the list price and not the negotiated rebate price? My insurance company should work to minimize my out of pocket costs and concentrate on providing care to me and my family.”