Terry’s Hot Take is a monthly resource for lawmakers by the Executive Director of Patients Rising, on behalf of the 133 million Americans living with chronic disease. (Distributed on the first Taco Tuesday of the month – best day of the week!)
- Deskside Briefing for Capitol Hill Staff: This summer, Patients Rising is hosting a Summer Deskside Learning Series to examine all sides of the drug pricing debate. On July 19, 2021, Dr. Mark Fendrick, Director of the University of Michigan’s Center for Value-Based Insurance Design, and Dr. Jon Schommer, professor at the University of Minnesota’s College of Pharmacy, provided a briefing to Congressional staff on the effect prescription drug costs have on patients. A copy of the briefing materials can be found here. Join us for our second Deskside Briefing, where we will examine measurement instruments in drug pricing on Monday, August 9 at 2:00 pm. (Zoom fatigued? No worries – the deskside is via old-school conference call.) Details available here.
- Patients Support the Supplemental Security Income Restoration Act: Currently over 8 million Americans with disabilities rely on supplemental security income (SSI) for essentials such as food, clothes, and medical treatment. Patients Rising NOW supports the SSI Restoration Act (S. 2753/H.R. 3763) because it will eliminate the marriage penalty, increase the resources limit, expand the SSI to at least 100% of the poverty level, and take away penalties on household members.
- Hand Sanitizer Safety and FDA Oversight: At the onset of the pandemic, the FDA released emergency guidance that lowered standards for hand sanitizer. This led to an influx of toxic and subpar hand sanitizers into the market. Unfortunately, the FDA has still not rescinded this emergency guidance and we are continuing to see the consequences of these inferior products remaining on the market. Patients Rising NOW encourages the FDA to rescind its guidance and to start enforcing higher standards on the products entering the market.
- National Health Issues Survey: Patients Rising conducted a national survey of 1,500+ registered voters on national health issues, including patient access and affordability, drug pricing policies, and trust among healthcare stakeholders. On July 14, part three of the survey findings were released.
- The top priority for voters included curing major diseases like cancer and Alzheimer’s and empowering health equity.
- More than two-thirds of survey participants said they had favorable views of Medicare and Medicaid.
- Voters gave positive marks to the Food and Drug Administration (FDA) for its handling of the COVID-19 treatments.
- Importantly, results indicated that voters have a great deal of trust in medical doctors, pharmacists, and scientific researchers when it comes to health policy decisions – compared to somewhat less trust in government health experts and health economists.
- Patients Rising Podcast: We explore the Alzheimer’s Drug Debate and how patients and their caregivers view the issue. Guest Russ Paulsen, COO of the USAgainstAlzheimer’s, talks about what this new drug means for the patient community, particularly minority populations.
- Other recent weekly episodes:
- You can listen to these episodes and follow the Patients Rising Podcast via your favorite podcast app, like Apple Podcast, Spotify, Google Podcast
- Patients Rising Podcast is published every Friday to update patients on issues in Washington that affect them. Each week patients are interviewed on policy challenges associated with managing and treating their disease, along with new information on the latest health issues, legal help for patients, and other resources.
Every month I hope to add value to your inbox by providing a look at legislation and regulation through the patient lens. If Patients Rising can be of assistance to your office, please reach out to me directly via email@example.com or at 202-750-4331.