Take Action
Lend Your Voice to Support the Improving Seniors’ Timely Access to Care Act of 2021.
This legislation is the culmination of months of bipartisan, bicameral discussions that included full engagement with all involved stakeholders, resulting in balanced, common-sense legislation that would help protect patients from unnecessary delays in care by...
Lend your voice to support the Help Ensure Lower Patient (HELP) Copays Act
Millions of vulnerable Americans across the country rely on cost-sharing assistance to afford the medicines they need. Patients in the private health insurance market have increasingly relied on this assistance due to rising out-of-pocket costs for drugs....
Ensure Patient Perspectives Are Included in FDA Benefit-Risk Assessments
Lend your voice to support the Better Empowerment Now to Enhance Framework and Improve Treatments (BENEFIT) Act. Congress and the Food and Drug Administration (FDA) have made considerable progress in driving forward policies and procedures to ensure the patient...
Ban Co-pay Accumulator Programs in Massachusetts
Show your support for S. 644 and H.1053 which would ban co-pay accumulator programs in Massachusetts. Many Insurers and PBMs are now utilizing copay accumulators to stop copay assistance from counting towards a patient’s deductible and maximum out-of-pocket spending....
Comment Solicitation on Policy Modifications on Non-Opioid Pain Management Drugs
There is a constant drum beat around the rising cost of drug prices, with little discussion of the benefit design in plans whether they are government or employer sponsored. Medicare Part B requires patients without supplemental coverage to pay a 20% copay on all...
Support the Speeding Therapy Access Today (STAT) Act
In March 2021, Congress introduced a bipartisan bill that will improve the development of treatments and access to therapies for those suffering from rare disease conditions. Called the STAT Act (H.R. 1730/S. 670), the bill seeks reforms within the Food and Drug...
Support the Safe Step Act
Lend your voice to support the The Safe Step Act of 2021 - S. 464/H.R. 2163 The Safe Step Act of 2021 The Safe Step Act amends the Employee Retirement Income Security Act (ERISA) to require a group health plan to provide an exception process for any medication step...
Support Johanna’s Law
Also known as The Gynecologic Cancer Education and Awareness Act, the legislation supports a variety of programs, research projects and activities at Centers for Disease Control and Prevention (CDC) aimed at educating healthcare providers and the general population...
Support the Supplemental Security Income Restoration Act
Currently over 8 million Disabled Americans rely on SSI (supplemental security income) in order to survive. Disabled people use SSI for essentials like food, clothes and medical treatment. Currently SSI rules require you to not maintain more than $2,000 in total...
Lend Your Voice to Support the Improving Seniors’ Timely Access to Care Act of 2021
Lend your voice to support the Improving Seniors’ Timely Access to Care Act of 2021: S.3018/HR. 3173. People with chronic illnesses often experience prior authorization issues in their care journey. Health insurance plans, including many Medicare Advantage plans,...
Be an advocate
for yourself – for others
Help us advocate for the rights of patients with chronic and life-threatening illnesses. Work with us at community, state and federal levels in support of reforms and legislation aimed at advancing patient access to and affordability of healthcare.
Join here, we’ll send actions you can take.
Get more info on advocacy
how • what • where
Sign Up for Advocacy
News & Updates:
By taking this action, you are agreeing to our terms of service and privacy policy. You can unsubscribe at any time.