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National Patient Group: White House’s War on Patients Harms Sick Americans
WASHINGTON — Patients Rising Now Executive Director MacKay Jimeson today released the following statement regarding the White House announcement of a blueprint to March In on medical treatment patents: “The one aspect of America’s healthcare system that works well is...
Letter to Senate Leadership Supporting PBM Reform from Employers & Other Stakeholders
Patients Rising, along with 50 other patient groups, sent a letter to Senate Leadership urging support for the health care provided through private employers to 179 million Americans by enacting strong pharmacy benefit manager (PBM) reforms this year. It is imperative...
Patients Rising Now Statement: ICER’s ‘Updates’ are Thinly Veiled Strategy to Continue Discriminatory Tactics
“Let’s be clear, today’s ‘updated’ ICER Value Assessment Framework should be left in the dark ages.
Patients Rising Now Issues Statement on E&C IRA Hearing
“Yesterday’s hearing highlighted a dangerous divide in American health policy that pits academics and government bureaucrats against patients, doctors, and innovators.
Patients Rising Now Signs onto Letter to Increase Patient Access to Pharmacy Services
Patients Rising Now joined several other advocacy groups in sending a letter of support for H.4066 and S.1425 in the Massachusetts State Legislature to the Joint Committee on Financial Services and Joint Committee on Public Health. The COVID-19 pandemic put into focus...
Patients Rising Now Issues ‘Must Pass for Patients’ List for Congress
Patients Rising, a national non-profit organization that advocates on behalf of patients with chronic illness and their caregivers, today released its Must Pass for Patients, its top five policy priorities that would improve life for all patients.
National Patient Advocacy Group: Patients Shut Out of Price Negotiation Process
WASHINGTON — Patients Rising CEO Terry Wilcox today released the following statement regarding the announcement by Medicare of the first ten drugs to be subjected to drug price negotiations: “Patients have been robbed of their voice yet again. CMS had every...
Patient Group Releases Special Report: CMS VS FDA: How Medicare and Medicaid Coverage Decisions Limit Patient Access
New report analyzes the patient impact of growing coverage restrictions for FDA accelerated approval treatments. WASHINGTON — Patients Rising, a non-profit organization that champions patients with chronic and rare diseases, today released a special report titled CMS...
Patients Rising Now Submits Comments on Patient Experience
Patients Rising Now submitted comments to the FDA on the recently released guidance on incorporating patient experience data in drug development. In clinical trials, the main areas of focus are the efficacy of a treatment as well as its safety. While these are...
Event: The Value of Accelerated Approval for Patients & Future Medical Advances
This briefing will address this new dynamic between CMS and the FDA and its impact on patients.
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