Oct 17, 2021 | COVID-19, Featured, Podcast, Uncategorized
On this episode of the podcast, Terry and Bob discuss how the country can better prepare for the next pandemic. Better preparation is especially necessary for those with rare and chronic diseases who are most vulnerable. They discuss pending legislation to make prior...
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Oct 3, 2021 | Featured, Federal Issues, Health Policy
On this episode of the podcast, Terry and Bob discuss the latest in Congress and what it means for patients. They highlight the two spending bills Democrats are trying to pass and the implications on those with rare diseases, whom they argue deserves a seat at the...
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Mar 1, 2021 | Featured, Podcast
On this episode of the podcast, Terry and Bob discuss the barriers to care faced by those who have rare diseases. Feb. 28th is Rare Disease Day, which raises awareness with policymakers and the public about rare diseases and their impact on patients’ lives. They...
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