• Healthcare Policy Pop Podcast
0 Items
Patients Rising Now
  • Home
  • About
    • About Us
    • Who We Are
    • Partners and Coalitions
    • Corporate Members
    • Financials
  • News & Insights
  • Positions & Resources
    • State Actions & Resources
    • Legislative Positions
    • Positions
    • Policy Supported
  • Take Action
  • Donate
Select Page
  • Home
  • About
    • About Us
    • Who We Are
    • Partners and Coalitions
    • Corporate Members
    • Financials
  • News & Insights
  • Positions & Resources
    • State Actions & Resources
    • Legislative Positions
    • Positions
    • Policy Supported
  • Take Action
  • Donate

Patients Rising Now Pens Letter in Support of Huntington’s Disease Legislation

May 25, 2022 | Letters Submitted

Huntington’s Disease is a rare, degenerative disease that leads to the breakdown of cells in the brain. For decades, patients who received that devastating diagnosis have had to undergo months, and even years, of waiting and maneuvering through red-tape before they could receive financial support and treatment. Senators Gillibrand & Cassidy and Congressmen Pascrell & Kinzinger have introduced legislation to expedite the access to treatment for patients diagnosed with Huntington’s and we are extremely grateful for their efforts.

Read our letter of support.

 

 

facebookShare on Facebook
TwitterTweet
FollowFollow us
PinterestSave

Tags:

Categories

  • Access
  • Advocacy
  • California
  • Coalitions
  • Comment Letters
  • Copay Accumulators
  • Copay Assistance
  • COVID-19
  • Drug Costs
  • FDA
  • Featured
  • Featured Action
  • Federal Issues
  • Health Insurance
  • Health Policy
  • ICER
  • Illinois
  • Issues
  • Letters Submitted
  • Letters Supported
  • Massachusetts
  • Medicaid
  • Medicare
  • Medicare Part D
  • News
  • Op-Ed
  • Out of Pocket Costs
  • Pharmacy Benefit Managers
  • Podcast
  • Prescription Drugs
  • Press Releases
  • Public Statement
  • QALY
  • State Issues
  • Statements
  • Step Therapy
  • Surprise Billing
  • Uncategorized
  • Value Based Insurance Design
  • Value Frameworks
  • Virtual Advocacy Chat

Tags

21st Century Cures Act 340B Access to Care Advocacy Alzheimer's Biden Administration biosimilars Cancer cms Copay Accumulators copay assistance COVID-19 Vaccine drug costs Drug Manufacturing Drug Pricing drug rebate fail first FDA Gene Therapies H.R.3 Health Insurance hospital bills HR 3708 hsa ICER Insurance design Joe Biden medicare Part B medicare part D Mental Health Nonmedical Switching open enrollment Out of Pocket Costs PBM PBMs pharmacy benefit managers Price Transparency Prior Authorization QALY Rare Disease Right to Repair Step Therapy Telehealth transparency Value Framework

Recent Posts

  • Update on Texas House Bill 999
  • PFPA Member Update – May 22, 2023
  • New Court Ruling May Restore Cost-sharing Barriers to Disease Prevention
  • Patients Rising Now Sends Letter of Support on PBM Bill
  • Patients Rising Now Signs onto Medigap Access Legislation

Get Updates In Your Inbox

Sign up for updates about our patient education, support and advocacy programs and initiatives.

YES, KEEP ME UPDATED

Patients Rising Now

We are a 501c4 group dedicated to demanding transparency in health care.  We are part of the Patients Rising suite of programs and services.

700 12th St. NW 700, Suite 700
Washington, DC 20005
202-679-8223

 

  • Privacy Policy
  • Sponsor Opportunities
  • Patients Rising
  • Patient Action Center
  • Facebook
  • Twitter
  • Instagram
All rights reserved. © 2023 Patients Rising Now