Discover the Many Ways You Can Advocate
Make A Difference!


Become an Advocate

There are many ways you can advocate for patient rights and access to care.  Let us know what interests you, and we’ll match you up with our programs.

Share Your Story

The most powerful way to spread understanding and compassion is to tell your story to others. Stories can encourage giving and motivate legislators, but they also bind our community together. 

Become a Social Media Ambassador

A social media ambassador conducts outreach to patients and their allies. The goal is to share our tools, our educational materials and grow the Patients Rising family. 

Guide for Commenting on ICER’s Draft Evidence Report on Treatments for Hypertrophic Cardiomyopathy

On August 18, 2021, ICER released its draft evidence report, “Mavacamten for Hypertrophic Cardiomyopathy: Effectiveness and Value.” This guide provides a framework for considering what aspects of the new hypertrophic cardiomyopathy treatment are important to patients and their families, and how to consider presenting those perspectives.

Drug Utilization Review Board Advocacy Toolkit

DUR Boards and P&T Committees determine how each drug must be covered by Medicaid in that state. This often means putting criteria in place to limit or even restrict
coverage. Some examples of those limits include age requirements, step therapy requirements, or even invasive tests for the patient. These limits can have the practical
effect of blocking patient access to a drug.

Stand Up for Causes, Quickly

Whether you are ready to join an e-signature campaign or to email your Congressional representative there are many easy ways to show your support for important causes that impact disabled, rare and chronic disease patients.

Become a Supporter

When you financially support Patients Rising you fuel the engine that magnifies the patient voice, ensuring it stays loud and clear. Your contribution keeps PATIENTS RISING fighting for you; not for special interests or corporations, for YOU. 

There are a few different ways to give. One will be right for you.