Dec 28, 2021 | Featured, Podcast
On this episode of the podcast, Terry and Bob discuss non-medical switching, which occurs when insurers change patients’ medications in an effort to lower costs. They explain how harmful this process can be for patients who are used to a medication that works....
Dec 20, 2021 | Featured, Podcast
On this episode of the podcast, Terry and Bob discuss how to fight unfair medical bills. They highlight how healthcare bills are complicated, non-transparent, and varied. Many patients face high bills that are simply incorrect or even predatory. Yet understanding...
Dec 15, 2021 | Drug Costs, Letters Supported
On behalf of the estimated 50 million Americans with autoimmune and immune-mediated diseases, the undersigned 64 organizations write to you regarding the importance of the Orphan Drug Tax Credit (ODTC) for people and families living with autoimmune disease and urge...
Dec 15, 2021 | Featured, Terry's Hot Take
Welcome to a special edition of Terry’s Hot Takes. Patients Rising is an organization that advocates on behalf of the 133 million Americans living with chronic disease. Like Congress, we still have more to do before the end of 2021: Last week, we hosted health policy...
Dec 14, 2021 | Featured, Podcast
On this episode of the podcast, Terry and Bob discuss funding for rare diseases and how important research and development is to develop new cures. They point out that before you worry about coverage for drugs you have to develop them. Yet doing so requires immense...
Dec 13, 2021 | Drug Costs, Featured
By Surabhi Dangi-Garimella, PhD In a bid to ensure access to medications for low-income and uninsured patient populations, the 340B drug discount program was launched in 1992. Designed primarily with safety-net hospitals in mind—meaning hospitals that serve a...
Dec 10, 2021 | Access, Featured, Value Based Insurance Design
By Surabhi Dangi-Garimella, PhD Can health care services have low value? Turns out, they do! A service or a treatment that provides no or little benefit to the patient—or worse, might harm the patient—is a low-value service. While we might quickly jump to conclusions...
Dec 10, 2021 | Featured, Surprise Billing
By Surabhi Dangi-Garimella, PhD CMS has issued an interim final rule (IFR) to tackle the problem of “surprise billing” that patients and their families face. The IFR will aid in implementation of provisions within the No Surprises Act to protect consumers from hefty...
Dec 6, 2021 | Public Statement
FOR IMMEDIATE RELEASE Dec. 6, 2021 Contact: Sarah Shelson sshelson@riesterpublicaffairs.com WILCOX STATEMENT ON BIDEN DRUG SPEECH Build Back Better Offers No Guarantee to Lower Patient Costs WASHINGTON — Patients Rising Executive Director Terry Wilcox today released...
Dec 6, 2021 | Featured, Federal Issues, Podcast
On this episode of the podcast, Terry and Bob discuss Congress’ consideration of the Build Back Better bill and the provisions that impact patients with rare and chronic diseases. They break down the legislative process ahead and highlight how the Senate...
