You Can Be an Advocate

There are many ways you can advocate for patients rights, access to care and affordabilty.  Sign up and we’ll work with you to find your niche.

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The most powerful way to spread understanding and compassion is to tell your story to others. Stories can encourage giving and motivate legislators, but they also bind our community together. 

We’re telling real patient stories about healthcare in America. 

Healthcare should be about a patient working with their care provider to find the right treatment. Period. 

Of course, that’s not how it really works. There are insurance barriers to access and affordability. Expensive markups by secretive pharmacy benefit managers. And callous value frameworks that value everything but the patient.

The answer: Your Patient Story

BRINGING THE PATIENT VOICE TO EVERY CONVERSATION ABOUT HEALTHCARE 

We believe that the true measure of value in our health care system starts with the concerns and goals of patients. Not payers. Not providers. Not manufacturers. But you, the patient.

Every day, patients living with rare diseases and chronic conditions face real barriers to accessing the right treatment. 

  • A retired grandmother who loses access to her arthritis treatment because of a midyear bait-and-switch by her insurance company.
  • A working mom who must live with migraine pain because of step therapy requirements by her pharmacy benefit manager. 
  • A toddler who must overcome a flawed value framework before accessing a life-saving treatment. 

Treatment decisions should be left to patients working with their care providers. 

By sharing the patient’s perspective on access, value and treatments, we can overcome the barriers that prevent patients from accessing the right treatment – right away. 

Patients Rising Stories

women talking at table

Actions you can Take

Review our state and federal actions below – help make a difference.

Our Patient Advocacy platform provides a full suite of advocacy initiatives. It focuses on cultivating and activating a diverse grassroots network of patients, families and allies to advocate for positive change in our complex healthcare system. 

We work at community, state and federal levels supporting reforms and legislation aimed at advancing patient access to affordable, quality healthcare. 

For state-by-state resources and actions, visit our State Pages.

Featured Advocacy Actions

All Advocacy Actions

Support the Speeding Therapy Access Today (STAT) Act

Support the Speeding Therapy Access Today (STAT) Act

In March 2021, Congress introduced a bipartisan bill that will improve the development of treatments and access to therapies for those suffering from rare disease conditions. Called the STAT Act (H.R. 1730/S. 670), the bill seeks reforms within the Food and Drug...

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Support the Safe Step Act

Support the Safe Step Act

Lend your voice to support the The Safe Step Act of 2021 - S. 464/H.R. 2163 The Safe Step Act of 2021 The Safe Step Act amends the Employee Retirement Income Security Act (ERISA) to require a group health plan to provide an exception process for any medication step...

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Advocacy Master Class

At Patients Rising we believe that patients and caregivers hold the power to move the needle in healthcare and create a better tomorrow for all patients and caregivers by raising their voice! That is why we are thrilled to announce the launch of our Advocacy Master Class designed to train patients, caregivers, and citizens in the art of healthcare advocacy.

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Drug Utilization Review Board Advocacy Toolkit

DUR Boards and P&T Committees determine how each drug must be covered by Medicaid in that state. This often means putting criteria in place to limit or even restrict coverage. Some examples of those limits include age requirements, step therapy requirements, or even invasive tests for the patient. These limits can have the practical effect of blocking patient access to a drug.