You Can Be an Advocate
There are many ways you can advocate for patients rights, access to care and affordability. Sign up and we’ll work with you to find your niche.
The most powerful way to spread understanding and compassion is to tell your story to others. Stories can encourage giving and motivate legislators, but they also bind our community together.
We’re telling real patient stories about healthcare in America.
Healthcare should be about a patient working with their care provider to find the right treatment. Period.
Of course, that’s not how it really works. There are insurance barriers to access and affordability. Expensive markups by secretive pharmacy benefit managers. And callous value frameworks that value everything but the patient.
The answer: Your Patient Story.
BRINGING THE PATIENT VOICE TO EVERY CONVERSATION ABOUT HEALTHCARE
We believe that the true measure of value in our health care system starts with the concerns and goals of patients. Not payers. Not providers. Not manufacturers. But you, the patient.
Every day, patients living with rare diseases and chronic conditions face real barriers to accessing the right treatment.
- A retired grandmother who loses access to her arthritis treatment because of a midyear bait-and-switch by her insurance company.
- A working mom who must live with migraine pain because of step therapy requirements by her pharmacy benefit manager.
- A toddler who must overcome a flawed value framework before accessing a life-saving treatment.
Treatment decisions should be left to patients working with their care providers.
By sharing the patient’s perspective on access, value and treatments, we can overcome the barriers that prevent patients from accessing the right treatment – right away.
Patients Rising Stories
Actions you can Take
Review our state and federal actions below – help make a difference.
Our Patient Advocacy platform provides a full suite of advocacy initiatives. It focuses on cultivating and activating a diverse grassroots network of patients, families and allies to advocate for positive change in our complex healthcare system.
We work at community, state and federal levels supporting reforms and legislation aimed at advancing patient access to affordable, quality healthcare.
Featured Advocacy Actions
Urge the FTC to study the perverse practices of Pharmacy Benefit Managers (PBMs)
On February 24, the Federal Trade Commission (FTC) issued a solicitation for comment regarding Pharmacy Benefit Managers (PBMs) and the impact PBMs have on patients, among others. You can see the official notice here. Here’s what you need to know: A...
Lend your voice to support the Help Ensure Lower Patient (HELP) Copays Act
Millions of vulnerable Americans across the country rely on cost-sharing assistance to afford the medicines they need. Patients in the private health insurance market have increasingly relied on this assistance due to rising out-of-pocket costs for drugs....
Ensure Patient Perspectives Are Included in FDA Benefit-Risk Assessments
Lend your voice to support the Better Empowerment Now to Enhance Framework and Improve Treatments (BENEFIT) Act. Congress and the Food and Drug Administration (FDA) have made considerable progress in driving forward policies and procedures to ensure the patient...
All Advocacy Actions
Urge the FTC to study the perverse practices of Pharmacy Benefit Managers (PBMs)
On February 24, the Federal Trade Commission (FTC) issued a solicitation for comment regarding Pharmacy Benefit Managers (PBMs) and the impact PBMs have on patients, among others. You can see the official notice here. Here’s what you need to know: A...
Lend Your Voice to Support the Improving Seniors’ Timely Access to Care Act of 2021.
This legislation is the culmination of months of bipartisan, bicameral discussions that included full engagement with all involved stakeholders, resulting in balanced, common-sense legislation that would help protect patients from unnecessary delays in care by...
Lend your voice to support the Help Ensure Lower Patient (HELP) Copays Act
Millions of vulnerable Americans across the country rely on cost-sharing assistance to afford the medicines they need. Patients in the private health insurance market have increasingly relied on this assistance due to rising out-of-pocket costs for drugs....
Advocacy Master Class
At Patients Rising we believe that patients and caregivers hold the power to move the needle in healthcare and create a better tomorrow for all patients and caregivers by raising their voice! That is why we are thrilled to announce the launch of our Advocacy Master Class designed to train patients, caregivers, and citizens in the art of healthcare advocacy.
More Actions
Drug Utilization Review Board Advocacy Toolkit
DUR Boards and P&T Committees determine how each drug must be covered by Medicaid in that state. This often means putting criteria in place to limit or even restrict coverage. Some examples of those limits include age requirements, step therapy requirements, or even invasive tests for the patient. These limits can have the practical effect of blocking patient access to a drug.