You Can Be an Advocate
The most powerful way to spread understanding and compassion is to tell your story to others. Stories can encourage giving and motivate legislators, but they also bind our community together.
Nothing is more powerful than an elected official hearing directly from a constituent.
Our Patient Advocacy platform provides a full suite of advocacy initiatives. It focuses on cultivating and activating a diverse grassroots network of patients, families and allies to advocate for positive change in our complex healthcare system.
We work at community, state and federal levels supporting reforms and legislation aimed at advancing patient access to affordable, quality healthcare
Sign Up for Advocacy Updates and Opportunities
Get Involved. Make a Difference!
Visit our Advocacy Action Center to review opportunities to make a difference.
Explore Opportunities to Advocate
We want to hear what you’ve experienced as a patient. Take a few moments to share your experience and motivations to advocate for patients.
When our elected officials hear from patients, they listen and take action.
Coalition Updates & Actions
We partner with many patient advocacy coalitions and lead some ourselves.
Learn about actions you can take right now in our coalition hub.
Advocacy Masterclass 2023 Applications are Open
The Advocacy Masterclass, part of our Patient Learning Center, is designed to train patients, caregivers, and citizens in the art of healthcare advocacy.
Learn More & Apply at our Patient Learning Center
State-by-State Actions & Resources
Learn about specific actions you can take to impact policy decisions and find critical advocacy resources.
We believe that the true measure of value in our health care system starts with the concerns and goals of patients. Not payers. Not providers. Not manufacturers. But you, the patient.
Every day, patients living with rare diseases and chronic conditions face real barriers to accessing the right treatment.
- A retired grandmother who loses access to her arthritis treatment because of a midyear bait-and-switch by her insurance company.
- A working mom who must live with migraine pain because of step therapy requirements by her pharmacy benefit manager.
Treatment decisions should be left to patients working with their care providers.
By sharing the patient’s perspective on access, value and treatments, we can overcome the barriers that prevent patients from accessing the right treatment – right away.