Wednesday Wake-Up: Healthcare Inequities and Barriers within the Minority Community

  April is National Minority Health Month and we're putting a spotlight on the National Institute of Minority Health and Health Disparities   Sen. Bill Cassidy's Health Legislative Director, Mary Moody, will join us to discuss the John Lewis National Institute on Minority Health and Health Disparities Research Endowment Revitalization Act. This bi-partisan legislation was […]

Afternoon Tea Time – Meet an Advocate

April is IBS Awareness Month as well as National Minority Health Month.Join me on Wednesday as I talk to Surakhsha Soond,Surakhsha is a girl with Crohn's disease. She is a patient advocate and proud owner of a permanent ileostomy. Surakhsha is also the co-founder of the new global South-Asian platform, #IBDesis (@IBDesis on Instagram)You don't […]

Wednesday Wake-Up: How did Covid-19 affect Mental Health in the U.S.?

May is Mental Health Awareness Month. We all know that the past year and a half has not been easy. Especially true for the rare and chronic disease communities. This week I will be joined by two guests! We will talk to Ashley Bykerk, Health Legislative Assistant to Senator Amy Klobuchar. Sen. Klobuchar recently introduced […]

Wednesday Wake Up: Why is Advocacy So Important?

Okay, so we have been meeting for a few months now. We have discussed topics like State Policy, Coalitions, State Policies on specific diseases, and so much more, but we never really discussed ins and outs of Advocacy.Well, this week you are in luck. Patients Rising Now has completed the inaugural Advocacy Masterclass to rave […]

Afternoon Tea Time: The Importance of Storytelling

When we talk to legislators and policymakers on what actually makes a difference, the one thing that they all say is, “Your Story Matters!” So do you ever wonder how you tell your story to others? Do you want to put your story to good use? Your story is what makes change happen.Join me on […]

Wednesday Wake-Up: Congressional Recess and What That Means For You!

Congress begins its recess in August. This began in 1970 when Congress mandated a summer break as part of the Legislative Reorganization Act. Why do our legislators take a recess when there is so much to be done? There are a handful of reasons that we will talk about and you might be surprised how […]

Afternoon Tea Time: Meet an Advocate

So we have all heard of the different awareness months. But have you ever heard of Healthcare Awareness Month? Most likely you haven’t because this August is the first time we are observing #HealthcareAwarenessMonth. This month was created to highlight healthcare legislation, news stories, and health issues happening specifically in the Pennsylvania House of Representatives, […]

Virtual Advocacy Chat Presents: A Town Hall with Jim Sliney Jr. – Discrimination Against Disabled Students in Higher Learning

Joelle's Virtual Advocacy Chat is handing the "camera" over to our own Jim Sliney Jr. for a very special virtual town hall to talk about Discrimination Against Disabled Students in Higher Learning. The #PatientsRisingFam is diverse, but one thread that runs through most of it is the presence of a disability. For those with disabilities […]