Nov 20, 2022 | Featured, Letters Submitted
Patients Rising Now, along with 25 other patient groups, sent a letter to Congressional leadership as well as Senate HELP committee and House E&C leadership urging support for generic drug policy riders. The 117th Congress will soon enter the final session period...
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Oct 31, 2022 | Featured, Medicare, Uncategorized
Patients Rising Now signed onto a letter of support for the bipartisan and bicameral Preserving Patient Access to Home Infusion Act (S.2652/H.R.5067). For decades, home infusion therapy services have been a lifeline for millions of Americans by delivering lifesaving...
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Oct 31, 2022 | Access, Featured
Surabhi Dangi-Garimella, Ph.D. A rare disease, by the U.S. definition, is one that afflicts less than 200,000 individuals in the population at a given time. Compared to more widespread conditions such as heart disease and diabetes, ‘rare’ diseases do not receive as...
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Oct 25, 2022 | Featured, ICER, Uncategorized
On October 11, 2022, ICER released its draft evidence report, “Fezolinetant for Moderate to Severe Vasomotor Symptoms Associated with Menopause.” This document provides a framework for considering what aspects of ICER’s review are important to women and their...
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Oct 4, 2022 | Access, Featured
Patients Rising Now signs on with 70 other patient groups to send another letter to the Department of Health and Human Services (HHS) praising the Department fortheir Proposed Rule regarding nondiscrimination in healthcare. We sent our own letter outside of this one...
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Oct 3, 2022 | Comment Letters, Featured, Uncategorized
The Department of Health and Human Services (HHS) held a comment period on a Proposed Rule they plan to implement. The Rule reverses a previous 2020 rule that narrowed the scope of protections against discrimination in healthcare. Patients Rising Now (PRN) submitted...
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