Jun 23, 2022 | Featured, ICER
On June 14, 2022, ICER released its draft evidence report, “AMX0035 and Oral Edaravone for Amyotrophic Lateral Sclerosis.” This document provides a framework for considering which aspects of two potential treatments for Amyotrophic Lateral Sclerosis (ALS) are...
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Jun 23, 2022 | Featured, Podcast
Recently, patients from the chronic disease community from across the country convened in Washington D.C. for the We the Patients Fly-In. They met with members of Congress and their staffs to advocate for several pro-patient healthcare bills that would improve access,...
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Jun 14, 2022 | Featured, Podcast, Uncategorized
On this episode of the podcast, Terry and Bob explain how patients can get relief from high prescription drug costs through independent pharmacies that cut out pharmacy benefit manager middlemen and insurers. They also point out AARP’s conflict of interest. The...
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Jun 6, 2022 | Access, Featured, Podcast
On this episode of the podcast, Terry and Bob discuss the power of precision medicine to harness genetic data to improve treatment regimens and overall outcomes for patients. However, they explain that accessing that data remains a challenge. They discuss the 2022...
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